Acitivities 2023 / 2022
2023
The activity during this year concentrated on the survey "Unmet needs of MEN patients". The questionnaire was first published in Germany during november/december. The results are presented in spring 2024. The European survey is to be published in spring 2024.
In April the International meeting WorldMEN took place in Marseille and Jo Grey presented the patients´view.
In September we were represented in Den Haag during the ESPE conference in a booth run by a group of Endo-ERN patient advocacy groups.
Due to the political situation we cancelled our ESE attendance in spring in Istanbul.
2022
On Saturday 20 th may, EMENA was delighted to host a Patient Voice Session at the ECE 2022 in Milan, Italy. EMENA Medical Advisors Prof. Gerlof Valk and Dr. Carla Pieterman were introduced by AMEND CEO and EMENA Board member, Jo Grey and went to give a wonderful, interactive talk about "MEN 1: more than just the 3 P´s.
The talk can still be accessed by those who registered for ECE 2022 online.
Our thanks go to the European Society for Endocrinology for the invitation and to Drs. Pieterman and Valk for an excellent and educational session.
