Acitivies 2021 / 2020 and earlier

2021 / 2020

In 2020 EMENA continued to prepare the publishing of the survey on Quality of care among European MEN patients.

The paper was submitted to an supplement of ENDOCRINE together with articles written by members - physicians and patients - of the European Reference Network on rare endocrine conditions (Endo-ERN) .

Patients’ perception on the quality of care for multiple endocrine neoplasia disorders in Europe: an online survey from a patient support group

Drewitz KP, Grey J, Brügmann P, Pichl J, Sammarco M, Aarts M, … Schaaf L.(Endocrine., 2021(2).)

European Patient Advocacy Groups (ePAGs) within the Endo-ERN identified a lack of knowledge about quality of care (QoC) of patients with multiple endocrine neoplasia (MEN). The aim of this study was to identify inequalities in care and to encourage improvements.

Endocrine 71,634-640 (2021)

article/abstract:

2019

German Society of Endocrinology (DGE)

Berlin, September 2019

2018

Society for Endocrinology

Glasgow, November 2018