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In September 2016 two auditors were elected by the General Assembly:

Prof. Dr. Ludwig Schaaf, Munich

Helga Schmelzer, Fürth

In 2016 EMENA received no funding, only one donation by a private member: € 161,50 and the regular membership fees.


 20017 Report

Membership fees 1.000,00 €
* Donation Voluntary Employee´s wages (50 €/hour) 4 Board Members / 4 hours/week(notionally amount)
41.600,00 €
SHIRE 5.000,00 €
NOVARTIS 5.000,00 €
1.145,93 €

Expanation to the donations / grants:

1. Novartis:preparation MEN Care Survey

2. SHIRE: general donation

3. EURORDIS (Programme of Support to European Rare Disease Federations Meetings)

Each pharma companies donation amounts to 11 percent of the total income.


In 2018, 2019,2020, 2021,2022 and 2023 there is no funding by pharma companies, only the membership fees are income.

Thank you for supporting our mission.