2022 On Saturday 20th May, EMENA were delighted to host a Patient Voice Session at the #ECE2022 in Milan. EMENA Medical Advisors, Prof Gerlof Valk and Dr Carla Pieterman were introduced by AMEND CEO and EMENA Board member, Jo Grey, and went on to give a wonderful, interactive talk about 'MEN1: more than just the 3Ps'.
In 2020 EMENA continued to prepare the publishing of the survey on Quality of Care among European MEN patients.
The paper was submitted to an ENDOCRINE supplement together with articles written by members (physicians and patients) of the European Reference Network on rare endocrine conditions (Endo - ERN) . (www.endo-ern.eu) Endocrine 71, 634-640 (2021) complete article/abstract:
first page:
In 2019 we presented our EMENA survey during different meetings: Our posters were accepted for example:
in Göttingen, Germany: 20.03. - 22.03.2019
National Conference Rare Diseases in Berlin, Germany : 26./27.09.2019
Thanks to Jo Grey, AMEND, UK World MEN 2016 in Utrecht, The NetherlandsT
Our EMENA booth Here is our report about
Here are some impressions: |